Ava Little Will Lead Walk for CMT in Lansing

The 14-year-old local resident will head a team at Hawk Island Park this September to raise disease awareness.

Updated on Sept. 25, 2026 in Special Needs

Ava Little Will Lead Walk for CMT in Lansing

On September 26, 2026, 14-year-old Ava Little will participate in the annual Walk for CMT at Hawk Island Park in Lansing. Little, who was diagnosed with the hereditary disorder at age three, leads a fundraising team known as Little But Mighty.

Why it matters

The event aims to raise awareness and donations to support research into finding a cure for Charcot-Marie-Tooth disease, a neuromuscular disorder caused by genetic mutations. Little’s leadership in the community has earned her recognition, including a Go-4-It Award from Local 4.

Ava Little is 14 years old and was diagnosed with Charcot-Marie-Tooth type 1A at age three. She organizes annual team participation in the Walk for CMT to increase public awareness and funding.

The players

Ava Little

Ava Little is a 14-year-old resident who leads the Little But Mighty team in local advocacy for neuromuscular disease research.

Local 4

Local 4 is a television news organization that recognized Ava Little with a Go-4-It Award for her community advocacy.

The details

Little organizes donations and leads her team, Little But Mighty, to advocate for those affected by Charcot-Marie-Tooth disease. Her efforts to combat the hereditary condition have been publicly acknowledged through a Go-4-It Award from Local 4.

Ava Little was diagnosed with the condition in 2015.
The Walk for CMT is scheduled for September 26, 2026, at Hawk Island Park.

Culture Shift

This event reflects the broader shift toward patient-driven advocacy where families organize to fund research for rare hereditary conditions. It highlights how local grassroots efforts contribute to the larger mission of the Charcot-Marie-Tooth Association's national walk program.

Residents interested in community health can join the walk at Hawk Island Park to support the Little But Mighty team and raise awareness for neuromuscular disorders. Participation provides local families affected by hereditary mutations a direct way to contribute to ongoing research.

The takeaway

Engaging in community-based advocacy can help amplify the voices of those living with rare genetic conditions. Families managing similar diagnoses may find local walks to be a valuable resource for both peer support and research funding.