The proposal seeks to establish October 5 as a day dedicated to spotlighting rare peroxisomal conditions.
Live Poll
Should the federal government officially designate specific days to raise awareness for rare diseases?
October 6, 2026
Level Access Named a Leader by GartnerThe research firm recognized Level Access in its 2026 Magic Quadrant for Digital Accessibility Platforms.
October 6, 2026
Congress Reauthorized Rare Disease Review ProgramThe federal program, reauthorized in February 2026, aims to accelerate drug development for pediatric rare diseases.
October 4, 2026
Inventor Launched Safety Light for Wheelchair UsersCarter Schott designed the Sol light to improve visibility for wheelchair users on the road.
October 3, 2026
Winslow Presented Book on Muscular DystrophyJason Winslow presented his new educational book at the Office of the First Lady to support families.
October 1, 2026
Disability Service Providers Have Cut ProgramsStaffing shortages and Medicaid funding cuts have forced providers to decline new referrals across the nation.
October 1, 2026
Couple Published Children's Book on Wheelchair UseJuan and Valeria Hernandez wrote a new children's book that topped the Amazon charts.
September 30, 2026
United Cerebral Palsy Awarded Three Research GrantsThe nonprofit provided funding to advance medical research for those living with cerebral palsy.
September 29, 2026
Social Security Added 14 Medical ConditionsThe Social Security Administration has expanded its list to expedite disability claims for 14 new conditions.
September 29, 2026
Research Center for Disabled Parents Lost Federal FundingThe national center faced potential closure after its long-standing federal grant expired on August 31, 2026.
September 29, 2026
Researchers Developed New Medicaid Services AlgorithmA new unified method aims to standardize how Home- and Community-Based Services are tracked across state Medicaid programs.
