ALS Advocate and Salesforce Employee Brooke Eby Died at 37
The dedicated advocate and Salesforce employee passed away at age 37 following an ALS diagnosis.
Updated on Oct. 2, 2026 in Alzheimer’s
Brooke Eby, a noted ALS advocate who documented her condition through social media, has died at age 37. She had been diagnosed with the disease in 2022 at age 33.
Why it matters
Eby became a prominent voice for the ALS community by sharing her personal experiences and using humor to destigmatize the condition. Her advocacy efforts through the community she founded, ALStogether, brought significant attention to the disease.
Brooke Eby was diagnosed with amyotrophic lateral sclerosis at age 33, four years after she began her career at Salesforce in 2016. She passed away at age 37, having spent her final years leading the ALStogether community.
The players
Brooke Eby
She was a dedicated Salesforce employee and a vocal advocate for the ALS community who founded ALStogether.
Marc Benioff
He is the CEO of Salesforce and announced the passing of his employee, Brooke Eby.
Salesforce
This global cloud-based software company served as Eby's employer and established an internal support group.
The details
After receiving her diagnosis in 2022, Eby gained a following by candidly sharing the progression of her ALS on social media platforms. Her employer, Salesforce, supported her by adapting work arrangements to accommodate her physical limitations, while colleagues formed the internal group ALSforce to show solidarity.
Timeline
Brooke Eby joined the Salesforce team in 2016.
She received her ALS diagnosis in 2022.
Brooke Eby died on October 1, 2026.
The Big Picture
Eby's advocacy follows the pattern set by the 2014 ALS Ice Bucket Challenge in its success at mobilizing public consciousness around a debilitating neurodegenerative condition.
Eby's public journey highlights the importance of workplace accommodations for employees managing terminal or chronic illnesses. Her story serves as a reminder of how social media can be used to raise disease awareness and support local advocacy networks.
The takeaway
Brooke Eby demonstrated how personal storytelling can foster community and provide vital support for those living with chronic diseases. Her efforts continue to encourage transparency and empathy for individuals navigating life-altering medical diagnoses.
Further reading
Learn more about ongoing research and support for neurodegenerative conditions on our Alzheimer’s section.
