Alzheimer's Care Survey Revealed Agitation Impacts
New survey data shows how agitation symptoms significantly diminish the quality of life for Alzheimer's patients.
Updated on Sept. 21, 2026 in Alzheimer’s
Live Poll
Do you feel you have adequate support and resources to manage a loved one's health needs?
A recent survey of 751 care partners found that 97% believe agitation negatively impacts their loved ones with Alzheimer's disease. The data highlights a widespread desire among caregivers for better tools to track these symptoms.
Why it matters
Understanding the prevalence of agitation is crucial for addressing the burden placed on family caregivers. Many participants expressed regret over not discussing these symptoms with healthcare providers earlier in the disease progression.
The survey included 751 caregivers who support the approximately 7 million people in the U.S. living with Alzheimer's. Research indicates 75% of these patients experience agitation symptoms that impede daily living.
The players
Axsome Therapeutics
This biopharmaceutical company specializes in developing innovative therapies for central nervous system conditions.
CaringKind
This organization provides comprehensive support and education services to individuals and families affected by Alzheimer's and related dementias.
The Harris Poll
This American market research and analytics firm is known for conducting public opinion polling and consumer behavioral studies.
The details
Nonaggressive symptoms, such as constant complaining or expressions of negativism, were identified as the most detrimental to quality of life. The survey was sponsored by Axsome Therapeutics and conducted in collaboration with CaringKind to emphasize the daily challenges of caregiving.
Timeline
The Harris Poll conducted the survey between October 7 and October 28, 2025.
Results were presented at Psych Congress 2026 in New Orleans on September 17 and 18, 2026.
Axsome Therapeutics officially announced the survey findings on September 21, 2026.
The Big Picture
This story follows a pattern set by the Psych Congress 2026 annual meeting, where patient-reported data is shared with industry professionals. The focus on patient-reported outcomes reflects a broader shift toward integrating caregiver experiences into clinical research frameworks.
Caregivers may find it beneficial to initiate early conversations with healthcare providers about nonaggressive symptoms like complaining. The findings suggest a clear need for better symptom-tracking resources to improve daily management of the disease.
The takeaway
Early recognition and open communication regarding agitation symptoms are vital for improving the quality of life for both patients and their families. Caregivers should proactively track mood changes to facilitate more productive discussions with their medical teams.
Further reading
Learn more about the latest developments and care strategies in our Alzheimer’s section.
More information
Review Additional survey results and information for further context on the study.
Live Poll
Do you feel you have adequate support and resources to manage a loved one's health needs?
